Lymph-what-oedema

About us:

L-W-O is a small non-profit established in 2013. We run a Facebook online (closed) support group set up due to the demand for questions and answers of those living with Lymphoedema. We need to recruit volunteer Trustees who can support our Founder and existing volunteers, importantly help us to develop and grow in the future.  

Lymphoedema is an incurable, lifelong condition that is managed and treated through various massage techniques, gentle exercise and daily wearing of compression garments. We have 1034 members across the UK and we have a global reach. We give advice and support based on our members experience and as a group we are non-medical.

We have a high social media profile with our website www.lymph-what-oedema.com, Facebook Community Page which is our public face, Twitter, Pinterest and LinkedIn. In addition, we have a children's group for families whose children live with Lymphatic Malformations.

L-W-O promotes:

• Self-Management
• Raising Awareness
• Bringing people together
• Empowering our members

The last two years we have been moving out into the community with information stands and have taken part in events organised by Macmillan, Breast Care, International Women's Day, Lymphoedema Awareness days, Asian Women's Support group and the John Lewis Hub in Birmingham.

We are looking for:

People who like a challenge.  You will have good communication skills, social media skills and organisational skills. L-W-O works with several professional organisations and therefore, some negotiating skills will be needed. We are fortunate to be funded by our members however, there may be some fundraising to organise dependent on how our needs change.

As a trustee you will be expected to attend quarterly evening meetings, held in Nuneaton, an AGM and time to give us one to two hours a month depending on the events we arrange. L-W-O is based in Nuneaton, Warwickshire and our work in the community is based around Coventry and Warwickshire.  Furthermore, you will have the following responsibilities:

• Making balanced, informed decisions
• Recognising and dealing with conflicts of interest
• Following appropriate controls and procedures
• Responsibility for volunteers
• Using your skills and experience
• Preparing for meetings
• Being prepared in case something goes wrong
• Understanding how we operate

We require two references and you will be asked to sign a confidentiality agreement. Subject to approval travelling expenses and subsidence can be paid. We are looking for a commitment of at least three years.

If you are interested in supporting people who live with this condition and helping to raise awareness of lymphoedema and helping L-W-O to grow please contact: Gaynor Leech lymphwhatoedema@gmail.com

Appeal for Volunteers

L-W-O is a non-profit organization providing non-medical support for those living with Primary and Secondary Lymphoedema.  We do our best to provide services free of charge.

To enable us to do this we rely on the support of Volunteers.  Our three Trustees as well as our two Online Admin Volunteers live with lymphoedema.  L-W-O has become a successful support group with over 1000 members across the UK, and other parts of the world.

L-W-O needs, Volunteers to help us in Coventry, Nuneaton and Warwickshire.  Do you have one or two hours per month to spare?

We urgently need someone with the following skills:

• Admin to help with organization, filing and database preferably with Excel or Word skills
• Social media skills or willing to learn
• Marketing or Press Releases
• Happy to make tea or coffee?
• Help in the Community with our Information Stands

L-W-O will offer: 

• Free training
• Travel/Parking expenses (subject to approval)
• Free refreshments when volunteering at the centres we travel to

Interested?  Please email:   Gaynor Leech lymphwhatoedema@gmail.com

The most commonly asked questions when I talk about volunteers is;  "Why do you need volunteers, if you run the website and support group over the internet".

L-W-O is now in the fortunate position that we are asked to various events in the community.  This might be to give a talk on lymphoedema, go to local community or charity events or to go to meetings that are beneficial to L-W-O.  The amount of invitations L-W-O is receiving cannot be done by one person alone.

Over the last two years we have turned down events in:

• Coventry
• Birmingham
• Nuneaton
• Warwick
• Leamington Spa

 This means missed opportunities in our local communities  

Page last up dated 09/07/2018