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Primary & Secondary Lymphoedema Online & in the Community

University of Life

One of the hardest criticisms I have had to deal with since starting L-W-O is being told I wouldn't succeed because I wasn't a 'professional'.  I didn't have a medical background.  Which is true however.  I have had a varied career working with children and young adults and I have had many years working in offices from the office junior through to being a PA for a Sales Director.  Volunteering in one form or another I have been doing for over 40 years.

I am a great believer in the University of Life and that we never stop learning.  I believe passionately in raising awareness of lymphoedema and I also believe that all the things I have learnt throughout my life have a hand in helping me run L-W-O since my diagnosis of secondary Lymphoedema.

Volunteer Experience

1976 - 1981 Leader of  Red Cross Detachment - Skills Advanced First Aid, Home Nursing, Welfare, organising first aid courses, organising training days, recruitment and fundraising.

1978 - 1981 Stroke Association Transport Organiser - organising transport to GP surgeries, dentists, hospitals for stroke patients  and the local stroke club.

1982 - 1983 STEP (Systematic Training for Effective Parenting) in Cape Town ongoing training as part of my job.

1990 - present a variety of courses including writing, poetry, crafts, history, English literature, art appreciation, body language, the list too long to add more.

2016 November and May 2017 Innovation Factory & Ideas Factory - For anyone who works in the Community either paid or voluntary a wonderful course for networking, learning about campaign charts, new and innovative ideas.  This course changed my way of thinking while updating my community skills.

2017 -  Cancer Champion organised by Cancer Research, course on the importance of screening

2018 - Act Build Change, Essential Community Organising.  This online course was brilliant showing the importance of organising, planning and defining goals.  For a group like L-W-O who receives no funding and relies heavily on goodwill this free course was a big boost.

2018 - Joined Collective Leaders funded by Grapevine Coventry & Warwickshire - a small group of like minded people wanting to make a difference in their communities

2018 - I was nominated to go on a days training for Coventry Year of Well Being:


When I started this journey in 2013 my computer skills were limited to word processing and a family history website, thanks to my grandchildren my skills now extend to PowerPoint, Excel and Publisher and I am still learning. 

I have over the last five years been invited to many conferences, seminars within the health-care community which all have an element of education and networking and therefore reiterating what I said at the beginning of this piece "we never stop learning".



Page created June 2018

Updated 12/12/2018