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Lymph-what-oedema

Primary & Secondary Lymphoedema Online & in the Community

L-W-O Support Group

Join us on our Closed Support Group

www.facebook.com/groups/lymphwhatoedema

£5.00

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Please Donate

L-W-O in the Community

Please help L-W-O continue to provide services for those living with Lymphoedema.  In 2017/18 L-W-O held events in Birmingham, Coventry, Nuneaton and increased awareness of Lymphoedema across the West Midlands.

Michelle Donohoe Twitter Admin, Martine Payne Volunteer and Gaynor Leech Founder at The John Lewis Hub, Birmingham

 

Without your help we cannot do this valuable work.

We are a support group for those living with Primary or Secondary Lymphoedema. There is a general assumption that because we operate online we do not incur running costs.  This is simply not true.  Hosting package, domain name and the usual utility costs all have to be paid for as do postage and printing costs.  L-W-O does its best to keep the costs to a minimum.  The website is written by myself, therefore does not incur further costs.

Wristbands

I have a few of the above wristbands for sale.  These wristbands are standard size.

They cost £4.50 for 2 this includes 2nd class Recorded Delivery.

Delivery will take up to 10 days.

UK delivery only

L-W-O online support group

Lymphoedema Awareness Day May 2016

Our next event

L-W-O Team

L-W-O is UK based, patient driven and voluntary.  Our support group is for anyone who lives with the lifelong condition of Primary or Secondary Lymphoedema or their family and friends.  We understand the anger, frustration and isolation of those living with lymphoedema.

On 11th January 2016 L-W-O became an independent, non-profit organisation.  L-W-O has its own constitution and a board of 4 volunteer trustees who are;

Gloria Clarke

Gaynor Leech

Jayne Langley

The online support group has three voluntary Admin assistants who vet and add members. They are;

Chris Hunter

Gaynor Leech

Karen Taft

You will find our support group at www.facebook.com/groups/lymphwhatoedema

In January 2017 L-W-O created our Children's online support group and Marie Barber became our volunteers children's Ambassador.

September 2017 L-W-O created a Twitter account that, our L-W-O Admin is Michelle Donohoe.

Diary Date 2018

L-W-O viewings website

 

Per day

Year

230

2017

180

2016

182

2015

169

2014

Fundraising

Help us raise funds.  Instead of using Google or other search engines please use easysearch as the will pay us for every search you click.  Help us by using this link: lwo.easysearch.org.uk

Medical Alert Cards

Our new Medical Alert Cards sponsored by:

 

Out in the Community

It takes time and resources to prepare for any event in the community.  Got the first time we now have our own display board in the past we have always had to borrow one from other organisations.  This is our latest one for March 2018.

Benefits Advice

I am always being asked for advice on Benefits and although I am not qualified to give advice you might find the following information useful.

July 2017, I spoke to several different benefit advisors so here is the information I was given.


PIP refused? If you disagree with the decision you can contact DWP/Dfc and ask for a 'Mandatory Reconsideration'.


If you still disagree with their response in the mandatory reconsideration then you can APPEAL the decision....
Tel: 0345 850 3322
DWP web: gov.uk/pip

Dfc (Department for Communities)
Tel: 0300 123 9221
Web: nidirect.gov.uk/personal-independence-payment

UK Support Groups

Support group news as published in Summer LymphLine 2017.
Macclesfield Support Group meets 3 times a year at the East Cheshire Hospice contact: Joy Stevenson 01625 665689

MAEH, at the Hospice Nuneaton, 5 - 7 p.m. Last Thursday of the month. Contact: Nicola Whitehouse 02476 865452

The above two are for Secondary Lymphoedema those patients who have had cancer.

Shropshire Lymphoedema Support Group. International Hotel, Telford. Third Wednesday of every month at 10.30 a.m. Contact: Yula Mortison, 07973 845474.

If you would like your support group to appear on this webpage, please email me Gaynor Leech

lymphwhatoedema@gmail.com

Lymphoedema Awareness Week 2018

L-W-O took part in Lymphoedema Awareness Week and members embraced  the #sockit campaign organised by our friends at LSN.

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Page last updated 16/04/2018