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L-W-O Community

For those living with Primary, Secondary & Paediatric Lymphoedema Online & in the Community

Safeguarding policy

Definition of Safeguarding

"Protecting people's health, wellbeing and human rights, and enabling them to live free from harm, abuse and neglect".


L-W-O Community has two non-medical support groups who support adults and families living with Lymphoedema.  We believe everyone has the right to be protected from harm or abuse and treated with respect regardless of:

  • age
  • disability
  • gender
  • race
  • religious belief
  • sexual orientation or identity                                                      

Working online is challenging and we have no control over much of what is said.  Therefore, we need to be careful of the answers we give.  Better to refrain from posting until you have time to think through your answer.  We will not tolerate any form of verbal abuse, foul language, or harassment across our community or social media platforms and any member who does not adhere to this policy will be removed or blocked.  Writing in capital letters on social media is considered to be a form of shouting and therefore deemed to be aggressive and will not be tolerated in our group. Although we operate mostly online, we do work out in the community offering information at events we are invited to:  Admin, Volunteers, Members, Followers, and Supporters need to follow these simple rules.

Code of Conduct


  • Treat everyone with respect
  • Treat everyone the same way that you would like to be treated
  • Respect everyone’s personal privacy
  • Listen to people's concerns and signpost them towards help
  • Be understanding about sensitive issues
  • Ask for advice if you are not sure about anything
  • Look after yourself
  • If you feel affected by any issues, ask for help



  • Make physical or verbal contact that might upset anyone
  • Stand by if you see anyone being bullied or mistreated
  • Make unpleasant or sexual remarks or gestures
  • Jump to conclusions about people before checking the facts
  • Exaggerate or make light of concerns

Private Message Abuse

Source used for writing these guidelines comes from NCVO Safeguarding

Families and Children

L-W-O Community does not engage directly with children across our community.  We engage with the families whose children live with paediatric, primary lymphoedema and lymphatic malformations.


The photographs/pictures that are used on our websites are either stock library pictures from our hosting package or graphic packages used under licence as part of those subscriptions.  L-W-O community will use a photograph supplied by a parent when permission has been granted.  Wherever possible we will not identify a child’s face unless it is a stock library photograph/picture or if we have written permission from the parent.

Parents reserve the right to ask us to remove pictures/photographs of their children. Photographs shared by members, followers or supporters are their responsibility and L-W-O Community accepts no liability for their inclusion on our social media platforms or websites.

This page was created by Gaynor Leech 18th June 2018

Page last updated 25th January 2021

Planned review January 2022