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L-W-O Community

Primary, Secondary & Paediatric Lymphoedema Online & in the Community

UK Centres of Excellence

As of August 2020 there only eleven centres of excellence in the World and we are lucky in the United Kingdom to have two of them and they are:

University Hospitals of Derby and Burton NHS Foundation Trust

St Georges University Hospitals

Organisations Associations and Groups

The British Lymphology Society (BLS)

Lymphoedema Support Network (LSN)

International Lymphoedema Framework (ILF)

Lymphoedema Network Northern Ireland (LNNI)

Lymphoedema Network Wales

Resources for Families of Children with Lymphoedema

L-W-O Community 4 Families (Website)

L-W-O Community 4 Families (Facebook Support Group)

Charlie from England (Instagram Account)

Willow from England - Klippel-Trenaunay Syndrome (KTS) (Instagram)

Danish Facebook Group for Parents

Cora from America - The Little Lymphie (Facebook Group)

Emma's Incredibles - From America (Facebook Page)

Carnia Mainka - (Facebook Group for German Speaking Families)

kif11kids.com - (website for German Speaking Families)

https://www.lymphido.it - (website for Italian Speaking Families)

European Organisations

European Reference Network

Page created 14/02/2021

About

L-W-O (lymph-what-oedema) was founded by Gaynor Leech in September 2013. All the material on these web pages is set out in good faith. Thoughts and interpretations are mine. Every effort has been made to acknowledge sources throughout this website. I am not an expert or medical professional; I have lived with lymphoedema since 2011. However, I am passionate about raising awareness of lymphoedema and encouraging you to become your own advocate.

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Terms and Conditions

L-W-O is a voluntary non-medical community. Our website does not host advertising. Our partnerships do not influence our editorial policies. We receive no official funding and rely on donations to operate. Please help us keep this website running, you can make a donation at Go Fund Me Neither our founder nor any volunteer receives a wage. By using this website, you are agreeing to our terms and conditions.

Medical Disclaimer

Information on this website must not be relied upon as an alternative to medical advice from your doctor or professional health care provider. You should never delay seeking medical advice or discontinue medical treatment because of information from this website.

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