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Primary & Secondary Lymphoedema Online & in the Community

Useful Links

Since I was diagnosed with Lymphoedema in May 2011 and I started my L-W-O journey in September 2013 my anger at the lack of information turned to passion to learn more about my condition.  Whilst there were few organisations that I could turn to, over the last 4 years the growth has been phenomenal.  I have taken quite a long time to decide how I could best represent other organisations who have the same aim to raise awareness of Lymphoedema and have decided on a simple link format.

The L-W-O website contains links to other websites.  These are provided as useful sources of information and inclusion of such links to other websites does not imply, endorsement by L-W-O, of any kind as to their content or quality.

Work in progress  

Breast Cancer Care

British Lymphology Society (BLS)

Cancer Research UK

Children's Special Lymphoedema Interest Group (CLSIG) (No web link)

Daylong (UK Xpandasox) 

Disabled Living Foundation

Disability Rights UK

Healthy Cooking Mom (Lifestyle)

International Lymphoedema Framework (ILF)

Lipoedema Ladies

Lipoedema UK

LNNI - Lymphoedema Northern Ireland

Lymphatic Education & Research Network (LE&RN)

Macmillan Cancer Support

Midlands Crafters 4 Breast Cancer

MLDUK Organisation - for MLD therapists

NHS Choices - Lymphoedema

NHS/Mood Zone

NORD - National Organisation for Rare Disorders

Reflexology Lymphatic Drainage

Swimming after Surgery

The Hummingbird Centre (Midlands)

The Lewis Foundation

​The Lymphie Life

Walking for Life UK


Yellow Card Scheme





I am an individual member of:




I am an affiliate of:

ILF - International Lymphoedema Framework


​L-W-O memberships

VAC - Voluntary Action for Coventry

WCAVA - Warwickshire Community and Voluntary Action


Coventry Help Groups

Coventry Independent Advice Service for Benefits & Debt Advice 

Tel: 024 7652 1100

'drop-in' session are across the city


Coventry Haven 

Tel: 02476 652 878

Refuge Accommodation 

Family Lives

Befriending Services

Tel: 07885 361697


Helpline:  0808 800 2222


Valley House

Tel:  02476 266280

Emergency Housing and community based services for vulnerable young people around Coventry.

This page was last updated 02/03/2018