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Lymph-what-oedema

Primary & Secondary Lymphoedema Online & in the Community

L-W-O Independent Non-Profit

Read more about L-W-O, the events we are invited to and the events we organise.

Why donations are so important for us to continue our work with raising awareness of lymphoedema.

 

Direct Debit

L-W-O receives no funding from any organisation.  From 2013 - 2016 L-W-O was funded by our Founder.  In January 2016 a constitution was developed and we encouraged our members to support us and we are now fully funded by them.  Thanks to the generosity of our members our website and social media allows us to provide non-medical tips and advice.

L-W-O Promotes:

  • Self-Management
  • Raising Awareness
  • Bringing people together
  • Empowering our members
  • Signposting to appropriate organisations

​You can support L-W-O by using one of our donate buttons, the one below allows you to set up a direct debit, or if you go to the bottom of this page you can donate a single amount.  Or you can organise a fundraising on our behalf.  All donations will be appreciated and will help us to continue working on behalf of our members.

 

L-W-O Policies

L-W-O is forever evolving and 2016/2017 we started to put policies in place that will enable us to work more efficiently.  In our drop down menu at the top of the page you will find details of:

  1. Support Group
  2. Terms and Conditions
  3. Mission Statement
  4. Website Linking Policy
  5. Newsletters  Unfortunately at this time Newsletters are on hold due to lack of time I have to produce them.

Please Donate

The generosity of our members allowed L-W-O to operate through 2017 without us having to organise fundraising events. We don't charge for membership.
None of our volunteers including myself get paid for our time. My hours are incalculable and the last four years I have kept the costs to £750.00 p.a.

This year it will cost £1500.00 to run this group, there are no costs for premises and all the utility costs are absorbed by me as part of my household expenses because L-W-O operates from my home. However, broadband, mobile phone, stationery, marketing tools, petrol etc., do cost.

This year, 2018 our flyers/posters need to be updated, my laptop is slowly coming to the end of its life. For several years we have had to borrow equipment like display boards projectors and the aim this year is to be able to purchase our own.

To move forward we need to be looking at how we develop and there are organisations who are willing to work with us with exciting opportunities. As founder of L-W-O I rely heavily on goodwill and so far, I have been extremely lucky.

Asking people to donate does not come easy for me, members donations help us operate, develop and move forward. You can donate through through the button below or a fixed amount through the buttons at the end of this page. Thank you for taking the time to read this, Gaynor

George Headquarters

Members of L-W-O where invited to George Headquarters, Lutterworth for the second time to advise and discuss on comfortable clothes for those diagnosed with cancer and lymphoedema.

We are Voluntary

At all times please remember what we do for        L-W-O is voluntary.  We do not get paid.  Therefore, donations are vital.  To help us keep this service running please donate.  You will find fixed donation buttons at the bottom of this page. 

Or a fun way to help at no extra cost to you is to shop with your favourite retailers through our Easy Funding raising page.

Easy Fundraising

Support Group Coventry

L-W-O Information

Launch of Asian Women's Support Group

I have been privileged to work on the steering committee to set up an Asian Womens Breast Cancer Support Group (AWBC) in Coventry from May 2017 - January 2018.  We launched on the 1st February 2018 here are some of the photographs from the launch event.

The launch was attended by Coleen Fletcher MP for Coventry North East, Surindar Nagra Founder of AWBC, Gaynor Leech L-W-O, Joanne Bailey, UHCW Breast Care, Christine McNaught Chief Executive Officer of FWT, Cllr Bali Kauer, Julie Hunt, Julie Bliss Macmillan, Olivia Bowskill Myton, and others including, Public Health and CAB.

Ideas Factory Coventry

The Ideas Factory in Coventry, where like-minded organisations come together to share ideas and development.  Through the Ideas Factory we are hoping in 2018 to work with Melissa Smith, Community Organiser, Grapevine Coventry & Warwickshire.  Melissa is interested in the field of long term illnesses and the affect it has on the lives of those diagnosed with long term conditions.

George Headquarters

L-W-O Member with 2018 range of nightwear that fits nicely with compression sleeve.

The L-W-O Journey

L-W-O has had an incredible journey.  Our website and Facebook Community page were set up in September 2013 and both are our public face.  The website is averaging over 1000 viewings per week and our community page is reaching more people than ever who live with both Primary & Secondary Lymphoedema.  You will find our public community page at:  https://www.facebook.com/lymphwhatoedema

This website provides information that promotes the well-being of lymphoedema patients, giving tips and advice.  L-W-O recommends always that you contact your own health-care professional.  Please read the medical disclaimer at the bottom of the page.  

In May 2014, I was asked by those who visited the community page to set up a Facebook Members Support Group, this is a closed group and therefore more secure than the community page.  This allows our members to talk more openly about their condition.  I did wonder whether it would be possible to run a support group online, however, the support group has over 950 members.   We have some lovely positive support members.  L-W-O continues to raise awareness of Lymphoedema.

Your will find our closed online support group at:  https://www.facebook.com/groups/lymphwhatoedema

From September 2013 - January 2016 I funded the website, online support group and community page.  This has cost me personally £750,00 per annum.  The hours I have devoted to L-W-O are incalculable.

Once I realized how much the running costs were, then, I felt for me personally this was unsustainable. With the help and guidance from Warwickshire Community and Voluntary Action (WCAVA) it was decided we would become a small independent non-profit.  This has been done to cover all the running costs and will give us subscriptions to other lymphoedema organisations and allow our trustees to go to conferences that specifically relate to lymphoedema.  It will also help towards financing future events so that we can to raise the profile of lymphoedema and bring together those living with this condition in the community.

L-W-O constitution was signed on 11th January 2016. Take a look at our Mission Statement

L-W-O is invited to several meetings and networking events that gives us an opportunity to work with other organisations who are interested in the raising awareness of lymphoedema. 

                      

Pictured above a few of our lovely members enjoying our Lymphoedema Awareness Day in May 2016.

Running L-W-O has led to many new opportunities and 2017 was a phenomenal year for us, being invited to many events in the communities of Bedworth, Coventry, Nuneaton and Birmingham. Our growth never cease to amaze me and I am humbled by the support that L-W-O continues to receive.

Our Banner

 

Our new roll-up banner

Thank you to Pat and Mark Spacey

 

In Coventry

Healthy Steps

Healthy Steps at our Lymphoedema Awareness day 2016.

£5.00

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£50.00

Page last updated 16/04/2018