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Lymph-what-oedema

Primary & Secondary Lymphoedema Online & in the Community

L-W-O Policies

L-W-O is forever evolving and 2016/2017 we started to put policies in place that will enable us to work more efficiently.  In our drop down menu at the top of the page you will find details of:

  1. Support Group
  2. Terms and Conditions
  3. Mission Statement
  4. Website Linking Policy
  5. Newsletters  Unfortunately at this time Newsletters are on hold due to lack of time I have to produce them.

Volunteers

We need volunteers

As we take on more community work we will need volunteers to help share the work.  If you are interested in becoming one of our Community Ambassadors or Volunteers, click on the links or contact me Gaynor Leech at:

lymphwhatoedema@gmail.com

 

Please Donate

The generosity of our members allowed L-W-O to operate through 2017 without us having to organise fundraising events. We don't charge for membership.
None of our volunteers including myself get paid for our time. My hours are incalculable and for four years I have kept the costs to £750.00 p.a.
This year it will cost £1500.00 to run this group, there are no costs for premises and all the utility costs are absorbed by me as part of my household expenses because L-W-O operates from my home.
However, broadband, mobile phone, stationery, marketing tools, petrol etc., do cost.
This year our flyers/posters need to be updated, my laptop is slowly coming to the end of its life. Instead of borrowing from other organisations we need a three fold display board.
To move forward we need to be looking at how we develop and there are organisations who are willing to work with us with exciting opportunities. As founder of L-W-O I rely heavily on goodwill and so far I have been extremely lucky.
This doesn't come easy for me but I am asking members for donations to help us operate this year and move forward.
You can donate through our support group page on the website. Thank you for taking the time to read this, Gaynor

 

The L-W-O Journey

L-W-O has had an incredible journey.  Our website and Facebook Community page were set up in September 2013 and both are our public face.  The website is averaging over 1000 viewings per week and our community page is reaching more people than ever who live with both Primary & Secondary Lymphoedema.  You will find our public community page at:  https://www.facebook.com/lymphwhatoedema

This website provides information that promotes the well-being of lymphoedema patients, giving tips and advice.  L-W-O recommends always that you contact your own health-care professional.  Please read the medical disclaimer at the bottom of the page.  

In May 2014, I was asked by those who visited the community page to set up a Facebook Members Support Group, this is a closed group and therefore more secure than the community page.  This allows our members to talk more openly about their condition.  I did wonder whether it would be possible to run a support group online, however, the support group has over 950 members.   We have some lovely positive support members.  L-W-O continues to raise awareness of Lymphoedema.

Your will find our closed online support group at:  https://www.facebook.com/groups/lymphwhatoedema

From September 2013 - January 2016 I funded the website, online support group and community page.  This has cost me personally £750,00 per annum.  The hours I have devoted to L-W-O are incalculable.

Once I realized how much the running costs were, then, I felt for me personally this was unsustainable. With the help and guidance from Warwickshire Community and Voluntary Action (WCAVA) it was decided we would become a small independent non-profit.  This has been done to cover all the running costs and will give us subscriptions to other lymphoedema organisations and allow our trustees to go to conferences that specifically relate to lymphoedema.  It will also help towards financing future events so that we can to raise the profile of lymphoedema and bring together those living with this condition in the community.

L-W-O constitution was signed on 11th January 2016. Take a look at our Mission Statement

L-W-O is invited to several meetings and networking events that gives us an opportunity to work with other organisations who are interested in the raising awareness of lymphoedema. 

Pictured above a few of our lovely members enjoying our Lymphoedema Awareness Day in May 2016.

We are Voluntary

At all times please remember what we do for L-W-O is voluntary.  We do not get paid.  Therefore, donations are vital.  To help us keep this service running please donate.  You will find a donate button above. 

Or a fun way to help at no extra cost to you is to shop with your favourite retailers through our Easy Funding raising page.

Our Banner

 

Our new roll-up banner

Thank you to Pat and Mark Spacey

 

Easy Fundraising

Page last updated 09/10/2017