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L-W-O Community

Primary, Secondary & Paediatric Lymphoedema Online & in the Community

Blog posts

Terminology

Author: Gaynor Leech Founder of L-W-O Community

 

One of the best parts of running a support group are the debates we have either from the questions that are asked or information that is posted.  When we discuss the terminology we use, you can guarantee it will upset some members while ot…

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The year that changed my life 2013

Author:  Gaynor Leech, Founder of L-W-O Community

 

This whole year has been a rollercoaster of mixed emotions, lockdown has forced a rethink the way organisations work whether you are in paid employment, running a business or those of us who work unpaid in the voluntary sector we will all h…

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Hand Sanitisers - Fire Risk?

Last week I posted in good faith a poster on #handsanitisers #firerisk and whether hand sanitiser was combustible. I had received the poster from a reliable source within the health care community I belong to and it had an NHS logo. The article had been mentioned in several overseas news outlets and…

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Taking a Break

Author:  Gaynor Leech Founder of L-W-O

 

 

Noticeably short blog, hopefully from next week I will start easing back into looking after the L-W-O community.  I hope you are all well.  As a family we have had a difficult time recently and my priorities will always be my family.

Hubby has b…

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Impact of Covid-19 on Lymphoedema


"Please find the results of a poll carried out in six different closed patient groups, on Facebook to investigate the impact of the Covid19 lockdown on patients with lymphedema (all types but not lipodema). This was very simple, using the poll option of Facebook. No names were collected - only the …

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Self-Isolation Week 12

Author: Gaynor Leech, Founder of L-W-O

 

 

What a strange week this has been. After 11 weeks we are beginning to ease out of lockdown and in our case almost total self-isolation.  New rules apply as we enter the second phase of an alien new world.  This blog will concentrate on things…

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Self-Isolation Week 11

Author:  Gaynor Leech Founder of L-W-O

 

 

You would have thought in the world of lockdown and self-isolation that groups like ours would go very quiet as people have other things to worry about and while our membership has been quiet the organisational side of L-W-O has been very busy indee…

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Self - Isolation Week 10

Author: Gaynor Leech Founder of L-W-O

 

 

This has been another crazy, busy week, creative, productive and one that has absolutely flown by. Yet is has not been stressful or tiring which you would have thought it might have been.  Routine and structure have gone totally out the window, but th…

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Self-Isolation Week 9

Author: Gaynor Leech, Founder of L-W-O

 

 

 

 

 

Sunday 10th May – was a quiet day just the two of us, hubby pottered around while I took a day away from social media, to recharge my batteries after last weeks busy week. A day to remind myself that what I do for L-W-O is as a volunteer,…

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Self-Isolation Week 8

Author:  Gaynor Leech, Founder of L-W-O

 

 

This has been a surreal week, I have spent lots of time reading various articles, despite the lockdown forged new friendships, remembered with quiet reflection, then celebrated VE day and as a community had two incredible opportunities put …

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Week 7 Self-Isolation

Author: Gaynor Leech, Founder L-W-O

 

 

Sunday 26th April - It is hard to describe how the weeks are panning out, like many others around the UK at times we have been lethargic, we seem to both be constantly tired and yet apart from the usual aches and pains that might keep us awake overall w…

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Self-Isolation Week 6

Author: Gaynor Leech, Founder of L-W-O

 

 

 

I would like to thank everyone who contacted me to say how much they loved last weeks Lymphoedema and Gardening video.  One of the questions I was asked was "When did my love of gardening start?" The easy answer is at a very early age and probabl…

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Self-Isolation Week 5

Author: Gaynor Leech - Founder L-W-O

 

 

 

This has been a strange week, don’t quite know why but maybe it’s because we are in our 5th week in lockdown, as per usual we have kept busy.  This week I have read and researched many different things from researching family history, rereading…

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Self-Isolation Week 4

Author: Gaynor Leech, Founder of L-W-O 

 

 

If you are following these self-isolation blogs you will know that most of you will be a week behind us because we where in self-isolation for a week before official lock-down started.

Sunday 5th April, the L-W-O groups have been quiet today.  Fo…

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Self Isolation Week 3

Author: Gaynor Leech, Founder of L-W-O

 

Sunday 29th March in case you missed it we had a few snowflakes morning and afternoon, both times it came to nothing, but the wind was icy cold and an attempt to walk around my garden took my breath away.  Not Covid-19 but Asthma.  However, it did …

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Self-Isolation Week 2

Author: Gaynor Leech, Founder of L-W-O

22nd – 28th March 2020

 

"Happy Mother’s Day to two amazing lady’s my Mum and my Mother-in-Law thank you both for being amazing Nannies and fabulous Great Nannies we love you both".

 

Thank you to Michelle Leech we love you dearly.

 

Mother’s…

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Self-Isolation Week 1

Author: Gaynor Leech, Founder of L-W-O

16th March – 20th March 2020

 

Monday, we watched in horror on the news that our Government announced we are all facing a new way of life… unprecedented as we get use to no social contact.

This is where communities like L-W-O can help each oth…

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Life with Lymphoedema & Pelvic Radiation Disease

Author: Val

Published: by Gaynor Leech, Founder of L-W-O

Hello, my name’s Val and I have Lymphoedema and Pelvic Radiation Damage.

Yes, I know, I sound like an addict, don’t I?  But that sentence pretty much sums me up as everything I do daily evolves around my care and maintenance on…

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Life Without An Umbrella

Authors: Gaynor Leech, Founder of L-W-O and Sarah Bowring L-W-O Member

 

In August 2019 Sarah private message me after I asked her how she was coping knowing that she had been poorly with cellulitis.

Breast Cancer

Although Sarah and I have never met, we have often corresponded via our support g…

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New Year - New Decade

Author: Gaynor Leech, Founder of L-W-O

After a lovely long break, I will start to ease back into managing our community Monday 20th 2020 the break I needed for my own Wellbeing.  In this first blog of the New Year I will set out our future.

There are three of our members stories I wanted to tackl…

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20 blog posts