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Lymph-what-oedema

Primary & Secondary Lymphoedema Online & in the Community

Blog posts

L-W-O End of year Report 2018

Author: Gaynor Leech, Founder of L-W-O

 

L-W-O End of Year Report 2018

 

This has been an amazing year for raising awareness for lymphoedema and L-W-O.  There have been a few lows but mostly L-W-O has seen supported, recommended and respected for what we do both online and in the Commu…

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Lymphoedema Social Media Community

Author: Gaynor Leech, Founder of L-W-O

 

LSMC

Lymphoedema Social Media Community

 

“Who else needs more awareness training?”

 

This week on Twitter Dr Melanie Thomas tweeted the above question.  The tweet was about raising awareness of lymphoedema education benchmark statements for lym…

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Social Self-Care

Author: Gaynor Leech, Founder of L-W-O

Social Prescribing or Social Self-Care

 

Social prescribing or social self-care the new buzz words to beat social isolation.  Yet GP’s in the UK have been able to refer patients to Gym’s and Slimming Clubs for several years.  At last mental health is beginn…

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The Impact of Social Media

Author: Gaynor Leech, Founder of L-W-O

Five years ago, there was such a negativity around social media support groups in the UK from the medical establishment it is a wonder any of us have survived.  Not only have we survived we have prospered.  I know we are not medically trained but we know mor…

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Are we a Community?

Author: Gaynor Leech, Founder of L-W-O

 

This is the third blog to the countdown to our 5th birthday in September.  Our Community Page on Facebook has been trial and error all the way.  When I created this page, I did not have the skills for my own personal Facebook let alone a public page for L-…

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Developing the L-W-O Website

 Author: Gaynor Leech, Founder of L-W-O

Developing the L-W-O website was challenging, frustrating and rewarding and it's hard to envisage that in September 2018 it will be five years since this journey started.  My only experience of writing websites was family history where I had most of the ma…

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Will the bubble burst?

Author:  Gaynor Leech, Founder of L-W-O

 

As we approach our website and Facebook Community Pages 5th birthday in September I often wonder whether the bubble will burst?

I was diagnosed in May 2011 with Secondary Lymphoedema, I cannot emphasis enough the anger and isolation I felt, not fo…

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Guest Blog Steve Kelland

Hi, Gaynor - good health greetings from Canada!

Written 5th June 2018: 

"Gaynor Leech - re: the wording used to describe lymphedema/lymphoedema, I suggest you might want to add "progressive" to its unwelcome 'attributes'. The more I monitor social media traffic involving the full range of LE-impa…

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Guest Blog Barbara Brookes

My Story 

Following Breast Cancer Surgery, in 2003, I didn’t develop Lymphoedema until 8 months afterwards and when at first, ‘it reared its ugly head’ - it frightened the living day lights out of me!  I’d been to my Daughters the night before for a meal, with some family & close friends, having g…

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Tamsin Sargeant Guest Blog

First published by Huff Post UK 01/03/2018   Reproduced here by permission of L-W-O member Tamsin Sergeant 

THE BLOG

Living With Lymphoedema After Breast Cancer

I don’t want to have to explain a condition that even my GP struggles to understand

“What have you done to your arm?”

My hear…

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Guest Blog

I’ll start with a confession.

I am obsessed with gloves. I think about them pretty much every day.  And I spend hours looking at them; in shops, online, on other people …     So when did this begin?

Well, it all began when I had my first Lymphoedema clinic appointment back in 2015.

“Of c…

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Please donate

Author:  Gaynor Leech, Founder of L-W-O

 

The generosity of our members allowed L-W-O to operate through 2017 without us having to organize fundraising events. We don't charge for membership.

None of our volunteers including myself get paid for our time. My hours are incalculable and for …

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End of Year Newsletter 2017

Author:  Gaynor Leech, Founder of L-W-O

 

2017 Newsletter

 

Starting 1st of December I will start our Christmas Postcard campaign similar to last years.  Apart from the Support Group in Coventry in December I will start to wind down until mid-January.  

This has been an extremel…

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Guest Blog

My Silver Anniversary – and just found out I am a ‘Lymphie' by Ann Marie

Yes, that’s  Yes, that's right. I’ve had primary lymphoedema for 25 years and you have no idea how much better I feel knowing I can call myself a ‘lymphie’…Why?  Because for 25 years I thought I tt thought I was  alone. I …

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October 2017

L-W-O was invited to a Pharmacists seminar on the 4th October, at The Novotel, Coventry, myself and Gloria, L-W-O trustee attended.  The event was organised by Macmillan with about 20 Pharmacists and two GP's invited.  They talked on how they can help cancer patients with their medication.  It was a…

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Sept 2017

September was a busy month.  I have been a member of LSN for approximately 4 years but have never attended one of their conferences, this year, Tuesday 5th September, I was able to go.  The trains past Euston were still not operating properly so thanks to my ever-patient husband he decided he wo…

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Guest Blog

 

This is the first time I have ever fully told my Lymphie journey, and what a journey it's been.  My name is Lisa I am 36 years old and live in the beautiful city of Exeter in Devon. 

Up until I was 7 years old I was fit and healthy apart from a couple of broken bones, and normal childhood in…

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Four Years Online

To this day I still don't know what my intentions were when I first started the website www.lymph-what-oedema.com.  I think when I look back it was intended to get my feelings and my anger at the lack of knowledge of lymphoedema on to paper.  It became obvious in those first few months that there wa…

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Guest Blog

This article was first produced in LymphLine and was also posted to Facebook, written by Andy Wilson

 

At 13 years old, a simple sprained ankle caused swelling in my right leg. This swelling never went down and after months of research (by my dad) we finally met Dr. Keeley. I owe so much to…

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Cancer Screening Champions

This week I attended a Cancer Champion Training course for (Community Cancer Champions and GP Practice Non-Clinical Champions) run by Cancer Research UK (CRUK).

The aim was to encourage members of the public to take up cancer screening as cancers detected through screening are easier to treat and…

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20 blog posts