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Lymph-what-oedema

Primary & Secondary Lymphoedema Online & in the Community

Blog posts

My Heroes - Fiona Stevenson

Author: Gaynor Leech Founder of L-W-O

Today I want to tell you about one of my heroes. Fiona Stevenson is the Founder of Swimming after Surgery (SAS) that supports women who have had breast cancer and encourages them to go swimming.   Fi  prefers to educate and frequently speaks about overcoming ch…

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Living with Lipoedema by Jo Mander

Edited by Gaynor Leech Founder of L-W-O

 

Hi I am Jo, and I have Lipoedema. I was diagnosed in Jan 2017. Lipoedema is a chronic condition that causes fat to accumulate below the waist, affecting hips, buttocks and legs that are out of proportion with the upper body. It is related to major hormone…

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Conversation with Lisa West

Author: Gaynor Leech Founder of L-W-O

Lisa first shared her story with L-W-O in October 2017, and what a journey it's been for her.   She 38 years old and lives in the beautiful city of Exeter in Devon. Up until she was seven years old, she was fit and healthy apart from a couple of broken bones, a…

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Conversation with Helen Hunter

Author: Gaynor Leech Founder of L-W-O

 

Helen wishes for a holistic approach to treating those living with lymphoedema?

 

Retired from The Queen Alexandra Hospital Helen Hunter was officially diagnosed with lymphoedema in 2017 although she had an inkling before this and her personal feeling wa…

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Conversation with Rhian James

Author: Gaynor Leech Founder of L-W-O

 

Rhian loves to travel and while her lymphoedema doesn’t stop her travelling, planning is very much a part of her trips.

 

Rhian James was first diagnosed with Lymphoedema in 2011, five months after a mastectomy (having had a lumpectomy in 1995) she and…

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Nutrition & Hydration Week

Author: Gaynor Leech, Founder of L-W-O

I was thrilled to welcome Pernille Henriksen as our guest writer this week between us we tackled Nutrition and Hydration working within the concept of living with lymphoedema.  What really surprised me was how much we were in sync as I was writing this blog Pe…

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Breaking the itch scratch cycle

Author: Gaynor Leech, Founder of L-W-O

 

Always do what it right for you

I can never quite work out if the itch/scratch cycle is solely down to my lymphoedema, the medication I must take or that I was born with very dry skin.  I know as a child I had eczema which would flare up from time t…

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Lymphoedema & Self Care

Author: Gaynor Leech, Founder of L-W-O

Last Wednesday I teased on support group ‘Watch this space’

As you might guess I have an absolute passion for raising awareness and supporting those of us that live with lymphoedema.  It has been a steep learning curve and every day I learn something …

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Cervical Cancer

Author: Gaynor Leech, Founder of L-W-O

 

Cervical Cancer Screening

 

I am one that does not need a lot of persuading on the matter of screening because my mammogram saved my life and caught my breast cancer at stage two.  This meant our amazing NHS moved swiftly to see that I was treated quick…

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L-W-O End of year Report 2018

Author: Gaynor Leech, Founder of L-W-O

 

L-W-O End of Year Report 2018

 

This has been an amazing year for raising awareness for lymphoedema and L-W-O.  There have been a few lows but mostly L-W-O has seen supported, recommended and respected for what we do both online and in the Commu…

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Lymphoedema Social Media Community

Author: Gaynor Leech, Founder of L-W-O

 

LSMC

Lymphoedema Social Media Community

 

“Who else needs more awareness training?”

 

This week on Twitter Dr Melanie Thomas tweeted the above question.  The tweet was about raising awareness of lymphoedema education benchmark statements for lym…

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Social Self-Care

Author: Gaynor Leech, Founder of L-W-O

Social Prescribing or Social Self-Care

 

Social prescribing or social self-care the new buzz words to beat social isolation.  Yet GP’s in the UK have been able to refer patients to Gym’s and Slimming Clubs for several years.  At last mental health is beginn…

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The Impact of Social Media

Author: Gaynor Leech, Founder of L-W-O

Five years ago, there was such a negativity around social media support groups in the UK from the medical establishment it is a wonder any of us have survived.  Not only have we survived we have prospered.  I know we are not medically trained but we know mor…

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Are we a Community?

Author: Gaynor Leech, Founder of L-W-O

 

This is the third blog to the countdown to our 5th birthday in September.  Our Community Page on Facebook has been trial and error all the way.  When I created this page, I did not have the skills for my own personal Facebook let alone a public page for L-…

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Developing the L-W-O Website

 Author: Gaynor Leech, Founder of L-W-O

Developing the L-W-O website was challenging, frustrating and rewarding and it's hard to envisage that in September 2018 it will be five years since this journey started.  My only experience of writing websites was family history where I had most of the ma…

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Will the bubble burst?

Author:  Gaynor Leech, Founder of L-W-O

 

As we approach our website and Facebook Community Pages 5th birthday in September I often wonder whether the bubble will burst?

I was diagnosed in May 2011 with Secondary Lymphoedema, I cannot emphasis enough the anger and isolation I felt, not fo…

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Guest Blog Steve Kelland

Hi, Gaynor - good health greetings from Canada!

Written 5th June 2018: 

"Gaynor Leech - re: the wording used to describe lymphedema/lymphoedema, I suggest you might want to add "progressive" to its unwelcome 'attributes'. The more I monitor social media traffic involving the full range of LE-impa…

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Guest Blog Barbara Brookes

My Story 

Following Breast Cancer Surgery, in 2003, I didn’t develop Lymphoedema until 8 months afterwards and when at first, ‘it reared its ugly head’ - it frightened the living day lights out of me!  I’d been to my Daughters the night before for a meal, with some family & close friends, having g…

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Tamsin Sargeant Guest Blog

First published by Huff Post UK 01/03/2018   Reproduced here by permission of L-W-O member Tamsin Sergeant 

THE BLOG

Living With Lymphoedema After Breast Cancer

I don’t want to have to explain a condition that even my GP struggles to understand

“What have you done to your arm?”

My hear…

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Guest Blog

I’ll start with a confession.

I am obsessed with gloves. I think about them pretty much every day.  And I spend hours looking at them; in shops, online, on other people …     So when did this begin?

Well, it all began when I had my first Lymphoedema clinic appointment back in 2015.

“Of c…

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20 blog posts