header photo

L-W-O Community

For those living with Primary, Secondary & Paediatric Lymphoedema Online & in the Community

Blog posts : "General"

Cancer Screening Champions

This week I attended a Cancer Champion Training course for (Community Cancer Champions and GP Practice Non-Clinical Champions) run by Cancer Research UK (CRUK).

The aim was to encourage members of the public to take up cancer screening as cancers detected through screening are easier to treat and…

Read more


There has been quite a lot written about foot-care lately.  So I thought I would take a look at this website to see what I had written.  I found articles on several different pages.  Therefore, this week, I have updated my writings.  As foot-care is so important to our lymphoedema health I decided I…

Read more

Volunteers needed

As L-W-O continues to move forward the importance of working with or becoming a member of other groups helps us keep up to date with what is going on in the world of small organisations like ours and gives us access to a wider range of resources.  Some organisations can be accessed for free, others …

Read more

Why we need Volunteers

L-W-O is a non-profit organization providing non-medical support for those living with Primary and Secondary Lymphoedema.  We do our best to provide services free of charge.

To enable us to do this we rely on the support of Volunteers.  Our four Trustees as well as our two Online Admin Volunteers …

Read more

No Expert?

I have many conversations with members of L-W-O, Community Groups and the Public about lymphoedema.  These conversations range from the curious, generally interested, indifferent and ignorance about the condition of lymphoedema.

Over the last six years I have developed quite a thick skin both fi…

Read more

Living with Lymphoedema


There is little understanding of chronic illnesses amongst health-care professionals or the public.  The frustration comes from the blank faces when you explain an illness, usually followed by “you will get better”.  NO.  The fact that an illness can be managed or treated becomes incomp…

Read more

August 2016

Time goes far to quickly and I am sorry that I haven't written a blog since February. 

This year has been a very busy one as L-W-O slowly forges new partnerships and is also moving out into the Community.

In March L-W-O had and information board at the Macmillan Centre in the George Eliot Hospit…

Read more

February 2016

February has been a very busy month.  Lots of work going on behind the scenes.

The organisation for our Lymphoedema Awareness Day on Wednesday 11th May is looking good.  Speakers and Demonstrators all in place. Buffet lunch sponsored by Trulife.  We have 30 places filled and 30 places left so if y…

Read more

Happy 2016

Christmas and the New Year festivities now behind me I am so looking forward to 2016.

Last year I nearly gave all this up because I was working almost a 12 hour day to get us to where we are today.  There has been a lot of hard work and a few tears along the way wondering what I had taken on.  I do…

Read more

October 2015

September was a reasonably quiet month.  I had a meeting with Community and Voluntary Action (CAVA) on how we move things forward.  This was a very productive meeting and I came away with lots of ideas some of which I hope to put in place by the end of the year or early 2016.

The middle of Septem…

Read more

August 2015

It is getting harder to find the time to write posts.  Never in my wildest dreams would I have imagined that my Lymphoedema journey would grow so quickly.  I now feel a real sense of achievement, proud that something I started is helping others with this condition.  My personal development and confi…

Read more

Brilliant May

As I start this blog I realise that I didn't write one in April or May, simply haven't had the time.  LWO is growing fast.

The Community Facebook page which is our public face has had 200 likes and our Online Support Group now has 454 members.  The website continues to have viewings on average of …

Read more


March is now coming to an end and I can't believe April is so close.  Once again it has been a very busy month.  The website has passed the 50,000 viewings and the online support group has 345 members.  The Community page has also received 152 'likes', lymph-what-oedema continues to grow.

The …

Read more

Busy February

February has been a very busy fast moving month and at times my feet haven't touched the ground.  The website is now averaging 140 viewings per day and over a 7 day period that is 980 viewings.  Overall we are not far off 45,000 viewings.  The community page has had 145 likes with traffic improving …

Read more

January support group

Today I am at the Mary Ann Evans Hospice in the new building The Warren, in the Sunflower room.

This is our first day time get together of 2015.  Introducing the members to the lymph-what-oedema website so that those who don't have access to the internet can see what's available.

We are planning …

Read more


Hard to believe we are three quarters through January.  February's Newsletter is almost complete not so much News at this time of year. 

Our event in May is progressing nicely and I am awaiting formal confirmation of another speaker.   We will be covering skin care and hosiery, breathing and exe…

Read more

New Beginnings

Welcome to 2015.  Last year (2014) was an amazing year for the website and our support group.  On a personal level I never cease to be amazed that this lifelong, incurable, manageable and treatable condition has taken me on a journey that I would never have envisaged nearly 4 years ago.

I have me…

Read more

Preparing for Christmas

I have had a very busy November and so far December mostly doing personal things.  Support Group at the Mary Ann Evans Hospice has now closed down for the Christmas and New Year period and doesn't restart until the end of January. 

There will be a new format for the Nuneaton support group as Janu…

Read more

Christmas Tips

This week I have been writing a Christmas tips/advice article to help make life simpler for all our Lymphwhatoedema online support group members.  The intent of the article is that you focus on the festive season and not your lymphoedema.  With a little pre-planning life is so much easier.  The arti…

Read more

Autumn Blues

Since coming back from my holidays in early October, I have struggled to get going.  My lymphoedema has only been border-line controlled and it has been a pain.  This is the first time since 2011 that I have felt under the weather and can only put this down to Autumn Blues.  Very unusual for me.

Read more

20 blog posts