Menu
header photo

Lymph-what-oedema

Primary & Secondary Lymphoedema Online & in the Community

Accessibility Information

None of us like to think of ourselves as being disabled but mobility problems come in various forms. From the swelling and painful lymphoedema in your feet, legs, arms or other areas that can't be seen to having osteoarthritis or rheumatoid arthritis and quite a few of our members have fibromyalgia, they all present challenges when travelling. However, with a little bit of planning and various aids to assist us along the way, nothing should stop you getting out and having fun.

Some people live with incontinence issues or bowel/stomach problems that cause you a great deal of embarrassment and having a radar key or "I need the loo" card can make life so much easier.

Then there are mental health issues that you are trying to keep to yourself, putting on that brave face and telling the world you're ok.  This section is not about solving those problems but giving you some information that might make life a little easier.

Bus Pass

Are you entitled to a bus pass?  To find out click on the link, enter your postcode in the search box and it will take you to your council's website.  The website states for 'elderly persons bus pass however those with a disability can also apply for one.

 

Blue Badge UK

If you have mobility problems, please apply for a Blue Badge, you can do this through your local council. As of 2019 some invisible disabilities will be eligible for a Blue Badge.

 

Communication Problems

If you have communication problems then a JAM Card is a good idea, designed for people with Autism, Asperger's, Dementia or Memory problems.

Where might you use this:

  • At a cash register
  • When shopping
  • Getting a Taxi
  • Public Transport

The Jam card is also for people who have had anxiety issues.  Virgin Trains have already adopted this scheme and have made a sensory room at Crewe Station for people to use to just give them time away from the hustle and bustle of the busy station.  Other rail companies are looking to do the same.  The reason for having the card is so vulnerable people are kept safe, Some schemes have lanyards. This card is more discreet.  Source:  Thank you to L-W-O member Fiona Stevenson for supplying this information.

 

Hidden Disability Lanyards

The Sunflower Hidden Disability Lanyards is being recognised by companies to assist you when you use their services. Available direct from the companies, so far I have found airports, railway stations and supermarkets who have introduced this service.  If this service has been introduced then staff have received appropriate training to assist you.

 

Radar Key

Rushing to the loo and you find the nearest disabled toilets are locked and your bladder/bowel can't wait while someone finds a key.

Then you can buy your own key from: As of June 2019, retailing at £4.75

https://www.disabilityrightsuk.org/shop/radar-key

Whether you are out in town on the edge of a town in the car these companies will allow you to use their loos free of charge.

MacDonald's, Burger King, KFC, Starbucks

 

Incontinence/Bowel Problems

If you have incontinence or bowel problems this app or card should be a great help.

https://www.bladderandbowel.org/help-information/just-cant-wait-card

The card which you can order online is free

Or for £1.99 you can down load the app to your mobile which makes this instant. It also gives you information as to where your nearest toilet is, unfortunately only available on IOS.

Fuel Assistance

There is a free app that lets you know which fuel stations in your area have staff available to assist disabled motorists. 

If you struggle through disability to fill up your fuel tank that, there is help at fuel stations.  Fuel Service is a free app that lets you know which fuel stations have staff available to help.  The app contacts the station in advance and lets staff know when you arrive.  The station will confirm before you arrive if they have staff available.  Find more details:

www.fuelservice.org

 

Cinema Card

Did you know that you might be entitled to a free cinema pass that allows your carer to go to the cinema free, if you receive the following?

  • Disability Living Allowance (DLA)
  • Attendance Allowance (AA)
  • Blind Persons Registration
  • Personal Independence Payment (PIP)
  • Armed Forces Independence Payment 

The card costs £6.00 and is valid for one year

Walking Aids

Image result for walking seat aids

If you struggle with walking this type of aid acts not only as a walking stick but becomes a seat for those moments when you need to rest.  There are so many different options to make life easier.

ICE

In case of emergency.   Please make sure you have ICE (in case of emergency) on your mobile phone.  These apps allow you to have a list of your medication, illnesses, next of kin, relevant telephone numbers and lots more information.  I have this message in my app; Lymphoedema no invasive procedures to right arm. No BP/Blood tests to right arm. No injections or IVS to right arm. 


Information first published on our Out and About Page October 2017

Page updated 24/06/2019