I am in the process of writing a new article on depression and isolation that lymphoedema patients feel. Yesterday I put a request on members group asking how they felt the lymphoedema affects their lives.
I was well aware that Primary lymphoedema was genetic but for some reason it didn't register how it ran in families. One of our members tells me that 4 generations of her family have been affected. this is beyond my comprehension.
The Secondary lymphoedema response was just as powerful but I did not feel there were as many surprises. Probably because I have secondary Lymphoedema.
I hope to finish the article over the weekend.