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L-W-O Community

Primary & Secondary Lymphoedema Online & in the Community

Blog posts : "General"

New Year - New Decade

Author: Gaynor Leech, Founder of L-W-O

After a lovely long break, I will start to ease back into managing our community Monday 20th 2020 the break I needed for my own Wellbeing.  In this first blog of the New Year I will set out our future.

There are three of our members stories I wanted to tackl…

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L-W-O End of Year Report 2019

Author: Gaynor Leech, Founder of L-W-O

 

As 2019 draws to a close, it’s time to reflect on our year, it has been challenging, stressful and at times I have seriously asked myself “why am I doing this”?  The answer is simple for the most part I enjoy raising awareness of lymphoedema and I am still…

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Lymphoedema side effect of radiotherapy

Author:  Gaynor Leech Founder of L-W-O

 

It is no secret that since my diagnosis of lymphoedema as a direct result of radiotherapy treatment for breast cancer, has led to my journey of patient/lymphoedema advocate to raise awareness of this condition.  Receiving a diagnosis of cancer is terrifyi…

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Roller Coaster Highs and Lows

Author: Gaynor Leech, Founder of L-W-O

 

This month I have had to say NO

more often than I would like,

 it hasn't been all bad,

I just need to make sure I remember to take a break.

 

What a strange month August has been, it's been a roller coaster of highs and lows spending time housekeepi…

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Protecting L-W-O's Future

Author:  Gaynor Leech, Founder of L-W-O

 

It is no secret that this year 2019 I have become increasingly dissatisfied with all the changes on Facebook.  While some of the changes have been for the better the majority have slowed us down.  This was the year Facebook informed us they were swit…

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Boobs Bras and Lymphoedema

Author: Gaynor Leech, Founder of L-W-O

In the past I have only written about this briefly and if at times this subject appears insensitive then I am sorry, but this is part of my journey and the difficulties I dealt with and still deal with are real.

A recap for those that don’t know, in 2010 I wa…

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Musings of a Pensioner

Author: Gaynor Leech, Founder of L-W-O

 

I am sitting staring at a blank page and feeling the urge to write.  The house is quiet, my 18-year granddaughter is having a sleepover and at 12.30 p.m. she still hasn’t surfaced.  Hubby is on the golf course. 

 

I run L-W-O from my conser…

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My Heroes - Fiona Stevenson

Author: Gaynor Leech Founder of L-W-O

Today I want to tell you about one of my heroes. Fiona Stevenson is the Founder of Swimming after Surgery (SAS) that supports women who have had breast cancer and encourages them to go swimming.   Fi  prefers to educate and frequently speaks about overcoming ch…

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Living with Lipoedema by Jo Mander

Edited by Gaynor Leech Founder of L-W-O

 

Hi I am Jo, and I have Lipoedema. I was diagnosed in Jan 2017. Lipoedema is a chronic condition that causes fat to accumulate below the waist, affecting hips, buttocks and legs that are out of proportion with the upper body. It is related to major hormone…

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Conversation with Lisa West

Author: Gaynor Leech Founder of L-W-O

Lisa first shared her story with L-W-O in October 2017, and what a journey it's been for her.   She 38 years old and lives in the beautiful city of Exeter in Devon. Up until she was seven years old, she was fit and healthy apart from a couple of broken bones, a…

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Conversation with Helen Hunter

Author: Gaynor Leech Founder of L-W-O

 

Helen wishes for a holistic approach to treating those living with lymphoedema?

 

Retired from The Queen Alexandra Hospital Helen Hunter was officially diagnosed with lymphoedema in 2017 although she had an inkling before this and her personal feeling wa…

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Conversation with Rhian James

Author: Gaynor Leech Founder of L-W-O

 

Rhian loves to travel and while her lymphoedema doesn’t stop her travelling, planning is very much a part of her trips.

 

Rhian James was first diagnosed with Lymphoedema in 2011, five months after a mastectomy (having had a lumpectomy in 1995) she and…

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Nutrition & Hydration Week

Author: Gaynor Leech, Founder of L-W-O

I was thrilled to welcome Pernille Henriksen as our guest writer this week between us we tackled Nutrition and Hydration working within the concept of living with lymphoedema.  What really surprised me was how much we were in sync as I was writing this blog Pe…

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Breaking the itch scratch cycle

Author: Gaynor Leech, Founder of L-W-O

 

Always do what it right for you

I can never quite work out if the itch/scratch cycle is solely down to my lymphoedema, the medication I must take or that I was born with very dry skin.  I know as a child I had eczema which would flare up from time t…

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Lymphoedema & Self Care

Author: Gaynor Leech, Founder of L-W-O

Last Wednesday I teased on support group ‘Watch this space’

As you might guess I have an absolute passion for raising awareness and supporting those of us that live with lymphoedema.  It has been a steep learning curve and every day I learn something …

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Cervical Cancer

Author: Gaynor Leech, Founder of L-W-O

 

Cervical Cancer Screening

 

I am one that does not need a lot of persuading on the matter of screening because my mammogram saved my life and caught my breast cancer at stage two.  This meant our amazing NHS moved swiftly to see that I was treated quick…

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L-W-O End of year Report 2018

Author: Gaynor Leech, Founder of L-W-O

 

L-W-O End of Year Report 2018

 

This has been an amazing year for raising awareness for lymphoedema and L-W-O.  There have been a few lows but mostly L-W-O has seen supported, recommended and respected for what we do both online and in the Community.

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Lymphoedema Social Media Community

Author: Gaynor Leech, Founder of L-W-O

 

LSMC

Lymphoedema Social Media Community

 

“Who else needs more awareness training?”

 

This week on Twitter Dr Melanie Thomas tweeted the above question.  The tweet was about raising awareness of lymphoedema education benchmark statements for lym…

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Social Self-Care

Author: Gaynor Leech, Founder of L-W-O

Social Prescribing or Social Self-Care

 

Social prescribing or social self-care the new buzz words to beat social isolation.  Yet GP’s in the UK have been able to refer patients to Gym’s and Slimming Clubs for several years.  At last mental health is beginn…

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The Impact of Social Media

Author: Gaynor Leech, Founder of L-W-O

Five years ago, there was such a negativity around social media support groups in the UK from the medical establishment it is a wonder any of us have survived.  Not only have we survived we have prospered.  I know we are not medically trained but we know mor…

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20 blog posts