Menu
header photo

L-W-O Community

Primary, Secondary & Paediatric Lymphoedema Online & in the Community

Blog posts : "General"

Self-Isolating Week 1

Author: Gaynor Leech, Founder of L-W-O

16th March – 20th March 2020

 

Monday, we watched in horror on the news that our Government announced we are all facing a new way of life… unprecedented as we get use to no social contact.

This is where communities like L-W-O can help each oth…

Read more

Life with Lymphoedema & Pelvic Radiation Disease

Author: Val

Published: by Gaynor Leech, Founder of L-W-O

Hello, my name’s Val and I have Lymphoedema and Pelvic Radiation Damage.

Yes, I know, I sound like an addict, don’t I?  But that sentence pretty much sums me up as everything I do daily evolves around my care and maintenance on…

Read more

Life Without An Umbrella

Authors: Gaynor Leech, Founder of L-W-O and Sarah Bowring L-W-O Member

 

In August 2019 Sarah private message me after I asked her how she was coping knowing that she had been poorly with cellulitis.

Breast Cancer

Although Sarah and I have never met, we have often corresponded via our support g…

Read more

New Year - New Decade

Author: Gaynor Leech, Founder of L-W-O

After a lovely long break, I will start to ease back into managing our community Monday 20th 2020 the break I needed for my own Wellbeing.  In this first blog of the New Year I will set out our future.

There are three of our members stories I wanted to tackl…

Read more

L-W-O End of Year Report 2019

Author: Gaynor Leech, Founder of L-W-O

 

As 2019 draws to a close, it’s time to reflect on our year, it has been challenging, stressful and at times I have seriously asked myself “why am I doing this”?  The answer is simple for the most part I enjoy raising awareness of lymphoedema and I am still…

Read more

Lymphoedema side effect of radiotherapy

Author:  Gaynor Leech Founder of L-W-O

 

It is no secret that since my diagnosis of lymphoedema as a direct result of radiotherapy treatment for breast cancer, has led to my journey of patient/lymphoedema advocate to raise awareness of this condition.  Receiving a diagnosis of cancer is terrifyi…

Read more

Roller Coaster Highs and Lows

Author: Gaynor Leech, Founder of L-W-O

 

This month I have had to say NO

more often than I would like,

 it hasn't been all bad,

I just need to make sure I remember to take a break.

 

What a strange month August has been, it's been a roller coaster of highs and lows spending time housekeepi…

Read more

Protecting L-W-O's Future

Author:  Gaynor Leech, Founder of L-W-O

 

It is no secret that this year 2019 I have become increasingly dissatisfied with all the changes on Facebook.  While some of the changes have been for the better the majority have slowed us down.  This was the year Facebook informed us they were swit…

Read more

Boobs Bras and Lymphoedema

Author: Gaynor Leech, Founder of L-W-O

In the past I have only written about this briefly and if at times this subject appears insensitive then I am sorry, but this is part of my journey and the difficulties I dealt with and still deal with are real.

A recap for those that don’t know, in 2010 I wa…

Read more

Musings of a Pensioner

Author: Gaynor Leech, Founder of L-W-O

 

I am sitting staring at a blank page and feeling the urge to write.  The house is quiet, my 18-year granddaughter is having a sleepover and at 12.30 p.m. she still hasn’t surfaced.  Hubby is on the golf course. 

 

I run L-W-O from my conser…

Read more

My Heroes - Fiona Stevenson

Author: Gaynor Leech Founder of L-W-O

Today I want to tell you about one of my heroes. Fiona Stevenson is the Founder of Swimming after Surgery (SAS) that supports women who have had breast cancer and encourages them to go swimming.   Fi  prefers to educate and frequently speaks about overcoming ch…

Read more

Living with Lipoedema by Jo Mander

Edited by Gaynor Leech Founder of L-W-O

 

Hi I am Jo, and I have Lipoedema. I was diagnosed in Jan 2017. Lipoedema is a chronic condition that causes fat to accumulate below the waist, affecting hips, buttocks and legs that are out of proportion with the upper body. It is related to major hormone…

Read more

Conversation with Lisa West

Author: Gaynor Leech Founder of L-W-O

Lisa first shared her story with L-W-O in October 2017, and what a journey it's been for her.   She 38 years old and lives in the beautiful city of Exeter in Devon. Up until she was seven years old, she was fit and healthy apart from a couple of broken bones, a…

Read more

Conversation with Helen Hunter

Author: Gaynor Leech Founder of L-W-O

 

Helen wishes for a holistic approach to treating those living with lymphoedema?

 

Retired from The Queen Alexandra Hospital Helen Hunter was officially diagnosed with lymphoedema in 2017 although she had an inkling before this and her personal feeling wa…

Read more

Conversation with Rhian James

Author: Gaynor Leech Founder of L-W-O

 

Rhian loves to travel and while her lymphoedema doesn’t stop her travelling, planning is very much a part of her trips.

 

Rhian James was first diagnosed with Lymphoedema in 2011, five months after a mastectomy (having had a lumpectomy in 1995) she and…

Read more

Nutrition & Hydration Week

Author: Gaynor Leech, Founder of L-W-O

I was thrilled to welcome Pernille Henriksen as our guest writer this week between us we tackled Nutrition and Hydration working within the concept of living with lymphoedema.  What really surprised me was how much we were in sync as I was writing this blog Pe…

Read more

Breaking the itch scratch cycle

Author: Gaynor Leech, Founder of L-W-O

 

Always do what it right for you

I can never quite work out if the itch/scratch cycle is solely down to my lymphoedema, the medication I must take or that I was born with very dry skin.  I know as a child I had eczema which would flare up from time t…

Read more

Lymphoedema & Self Care

Author: Gaynor Leech, Founder of L-W-O

Last Wednesday I teased on support group ‘Watch this space’

As you might guess I have an absolute passion for raising awareness and supporting those of us that live with lymphoedema.  It has been a steep learning curve and every day I learn something …

Read more

Cervical Cancer

Author: Gaynor Leech, Founder of L-W-O

 

Cervical Cancer Screening

 

I am one that does not need a lot of persuading on the matter of screening because my mammogram saved my life and caught my breast cancer at stage two.  This meant our amazing NHS moved swiftly to see that I was treated quick…

Read more

L-W-O End of year Report 2018

Author: Gaynor Leech, Founder of L-W-O

 

L-W-O End of Year Report 2018

 

This has been an amazing year for raising awareness for lymphoedema and L-W-O.  There have been a few lows but mostly L-W-O has seen supported, recommended and respected for what we do both online and in the Community.

Read more

20 blog posts